CASE
HOMEPAGE

2002 HRSA RWC CONFERENCE

CASE STUDY ABSTRACT, OBJECTIVES & DESIGN

CASE STUDY AMENDMENT: IMPACT OF 9/11 ON PWH/As TAKING HAART

CASE STAFF & GRANTEE ROSTER

DATA COLLECTION TOOLS

CASE STUDY DATA ANALYSIS PLAN

DISSEMINATION ACTIVITIES

RESOURCES & LINKS

CASE
The Center for Adherence Support Evaluation
at the New York Academy of Medicine

• Comprehensive news briefing with daily updates
  
• Journal scan with abstracts of major HIV/AIDS articles
  
• Treatment center, with clinical guidelines and treatment updates
  
• Materials for patient education
  
• Prevention information
  
• Ethics and policy update with a review of key issues in testing, reporting, privacy, and discrimination
  Sponsor: American Medical Association

• Medical information o Prevention and education
  
• Social issues and policy o Statistics and epidemiology
  
• International o Special populations
  
• Federal policy o State-level statistical & service info.
  

• Physician and patient Q & A
  Links to full text publications on HIV treatment and care for physicians and patients
  
• Treatment guidelines
  
• Information on clinical trials
  
• Information on relevant conferences
  
• Links to sites focused on related infectious diseases including TB and hepatitis C
  
• Links to epidemiological and statistical data (national and international)
  
• Prevention information
  

• Clinical trials
  
• Drugs
  
• Treatment information
  
• Consumer health information
  
• Journal articles, books, audiovisuals
  
• Living with AIDS
  
• Prevention
  
• Research
  
• Special populations
  
• Spanish websites
  

1. lower barriers between patients and clinicians,
2. demystify HIV/AIDS and its treatment,
3. improve the quality of life of patients, and
4. foster community through human connection. Information is available in English and Spanish. Major topic areas include:
   
   • AIDS basics and prevention (including testing, special populations, recently diagnosed, treatment & drug glossaries)
     
   • Treatment (adherence, medications, opportunistic infections, experimental drugs, alternate therapies)
     
   • Quality of life (nutrition; fatigue; mental health; finance, legal and workplace issues)
     
   • Government (legal issues, HIV/AIDS funding)
     
   • Interactive Q & A forums
     
   • Hotlines and service organizations
     

Project Inform
http://www.projinf.org
A patient oriented website (in English and Spanish) providing:

• Treatment information;
  
• Policy and advocacy information and updates;
  
• Specialized information for women
  
• Information and links to Project Inform programs, including the Treatment Action Network, treatment hotline, and outreach and educational activities.
  

Sponsor: Project Inform

New York State Department of Health
http://www.health.state.ny.us/nysdoh/aids/pindex.htm
A website containing information on counseling and testing in New York State. Contains:

• AIDS/HIV Counseling and testing directory in New York State
  
• Expanded syringe exchange demonstration program
  
• New York State HIV Reporting and Partner Notification Law
  
• Calendar of HIV/AIDS training
  

Sponsor: New York State Department of Health

FBX Center, University of Medicine and Dentistry of New Jersey
http://www.fxbcenter.org/
A website for the François-Xavier Bagnoud Center (FXB) at UMDNJ which focuses on the care of mother to child transmitted HIV disease. The site contains:

• HIV basics
  
• Caring for your child
  
• Coping with HIV
  
• Treating HIV
  
• Nutrition
  
• Finding new treatments
  
• Frequently asked questions/Ask your own question
  
• Online discussion forum
  

Sponsor: The François-Xavier Bagnoud Center

HIV Treatment Information
HIV/AIDS Treatment Information Service
http://www.hivatis.org
Links to federally approved treatment guidelines and treatment-related research from the US and abroad. Information is available in both English and Spanish.
Sponsor: HIV/AIDS Treatment Information Service,
a project of the Department of Health and Human Services,
co-sponsored by NIH, CDC, HCFA, and HRSA

AIDS Map
http://www.aidsmap.com

• HIV news and treatment information and links to HIV service organizations around the world.
  
• "The Wheel: Your Personal Pill Planner". In interactive pill planner that produces a 24-hour clock face with an individualized schedule of medications and other daily activities (like eating and sleeping).
  

Sponsors: National AIDS Manual (UK), British HIV Association

AIDS Clinical Trials Information Service
http://www.actis.org
A website providing information about clinical trials, vaccine trials, drug information, and treatment guidelines
Sponsor: AIDS Clinical Trial Information Service, a service of the U.S. Department of Health and Human Services

AIDS Treatment Data Network
http://www.atdn.org/
A website containing information about treatments, tests, and conditions as well as informational databases regarding AIDS treatments, research studies, services, & accessing care. Information is available in both English and Spanish and includes:

• Directory of clinical trials
  
• The Access Project - information about access to government and pharmaceutical sponsored treatments
  
• Fact Sheets
  
• Glossaries of drugs and terms
  
• Community forum announcements
  

Sponsor: AIDS Treatment Data Network

HIV Prevention Information
Center for AIDS Prevention Studies
http://www.caps.ucsf.edu
A website, in English or Spanish, including research as well as different projects and programs conducted at the University of California, San Francisco aimed at HIV prevention. Includes:

• A prevention tool kit
  
• Various articles and publications dealing with prevention
  
• A prevention fact sheet
  
• Current news section
  

Sponsor: University of California, San Francisco

The CDC National Prevention Information Network
http://www.cdcnpin.org/start.htm
A national reference, referral and distribution service for information on HIV/AIDS, STDs and TB. Includes

• Local and national resources and services
  
• Educational materials (brochures, directories, training guides, posters)
  
• Funding database
  

Sponsor: CDC National Prevention Information Network

AIDS Treatment News
http://www.aidsnews.org
The AIDS news organization is a treatment website, available in different languages and on an international level, that contains:

• Important phone numbers o Publications and important databases
  
• Clinical trials o Useful medical journal online
  

Other sections include:

• Alternative therapies o HIV and aging o Statistics
  
• Access to care o Resources for women o Organizations
  
• Insurance information o Ask an expert o Pharmacology links
  
• Legal information o Educational information
  

Sponsor: AIDS Treatment News

Ongoing HIV/AIDS Research
US Food and Drug Administration, HIV and AIDS Activities
http://www.fda.gov/oashi/aids/hiv.html
The FDA has posted information on its ongoing research, which contains:

• Research milestones
• Clinical trials and drug developments
  
• New testing information
• HIV/AIDS meetings
  
• HIV/AIDS therapies
• Newly approved medical therapies
  
• News releases
  
• Archives of speeches, relevant articles, brochures, and evaluations
  

Sponsor: US Food and Drug Administration

Office of AIDS Research
http://www.nih.gov/od/oar
NIH has a website dedicated to providing the public with information on their research, including:

• Updates describing current research
  
• Information on meetings, web broadcasts, and minority initiatives
  
• Links to the office of AIDS research as well as other important sites
  

Sponsor: National Institutes of Health, Office of AIDS Research

New York State Department of Health
http://www.health.state.ny.us/nysdoh/research/aids/homeaids.htm
Contains AIDS cases reported from September 1996 through June 2000 as well as quarterly updates
Sponsor: New York State Department of Health

New York State Department of Health
http://www.health.state.ny.us/nysdoh/hivaids/homeaids.htm
Contains New York State Reports regarding AIDS, specifically:

• HIV Infection in New York State
  
• AIDS Morbidity and Mortality in New York State
  
• Health Services for AIDS-HIV in New York State
  
• AIDS related costs and expenditures in New York State

Sponsor: New York State Department of Health

HRSA HIV/AIDS Bureau
http://www.hab.hrsa.gov
This is the HIV/AIDS Bureau website, which includes:

• Programs and funding/grant opportunities o Educating providers in HIV care
  
• Publications o Policy and organizations
  
• What's happening now?
  

Sponsor: Department of Health and Human Services

The American Foundation for AIDS Research (AMFAR)
http://www.amfar.org
The American Foundation for AIDS Research's site contains:

• Programs and press releases
• Treatment update
  
• Conferences and special events
• Daily HIV/AIDS news
  
• Grant information and publications
  

Sponsor: American Foundation for AIDS Research

The Science of HIV/AIDS
CDC-NCHST Divisions of HIV/AIDS Prevention
http://www.cdc.gov/hiv/dhap.htm
Link to information on the basic science of HIV and AIDS. This website discusses:

• Prevention and vaccine research
  
• The CDC's role in prevention and different prevention tools
  
• Basic statistics, treatment information, funding, testing, and publications
  
• Links to other CDC and prevention websites.
  

Sponsor: Centers for Disease Control and Prevention

The CDC National Prevention Information Network
http://www.cdcnpin.org/db/start.htm
Link to information related to HIV/AIDS, STD's and TB, including:

• Resources and services (local and national)
  
• Educational materials (brochures, directories, training guides, and posters)
  
• Funding database
  

Sponsor: CDC National Prevention Information Network

AIDS Treatment News
http://www.immunet.org/index.html
This website is updated regularly and contains:

• AIDS factsheets
  
• AIDS treatment news, past and present as well as other news
  
• A bookstore, community information, and links to other relevant websites.
  

Sponsor: AIDS.org

Daily Email Update Sites
The Henry J. Kaiser Family Foundation
http://www.kaisernetwork.org/daily_reports/rep_hiv.cfm
Sponsor: Henry J. Kaiser Family Foundation

Medscape
http://www.medscape.com
Sponsor: Medscape

The Centers for Disease Control and Prevention
http://www.cdc.gov
Sponsor: Centers for Disease Control and Prevention

The CDC National Prevention Information Network
mailto:preventionews-subscribe@cdcnpin.org
Sponsor: Centers for Disease Control and Prevention

HIV/AIDS Resources for Minorities
African American AIDS Policy and Training Institute
http://www.aaainstitute.org
This website aims to provide information on AIDS Policy relating to African Americans. It includes:

• Projects and publications o Partners of the Institute
  
• Current news
  
• Black Treatment Advocated Forum

Sponsor: African American AIDS Policy and Training Institute

The Balm in Gilead
http://www.balmingilead.org
The Balm in Gilead empowers churches in the struggle against the devastation of HIV/AIDS in the black community. Their website contains:

• AIDS facts
  
• Resources and a bookstore
  
• Programs such as HIV testing campaign
  
• A section regarding the black church week of prayer
  

Sponsor: The Balm in Gilead

The National Minority AIDS Council
http://www.nmac.org
Topics include:

• Programs o Publications
  
• Chats with experts o Local community access by state and by region
  
• Virtual conferences o Links to HIV/AIDS facts

Sponsor: National Minority AIDS Council

The Office on Minority Health Resource Center
http://www.omhrc.gov
This is the website for the Office on Minority Health Resource Center. It contains:

• Conferences and publications o Health links and resource center
  
• What's new, such as funding announcements o Data/statistics and programs
  
• Initiatives such as the living with HIV/AIDS initiative

Sponsor: Department of Health and Human Services

Literature Search Websites
Internet Grateful Med
http://www.igm.nlm.nih.gov
Internet Grateful Med- Literature search website for medical literature
Sponsor: National Library of Medicine
Co-sponsor: NIH

National Library of Medicine Pub Med
http://www.ncbi.nlm.nih.gov/PubMed/
PubMed- Literature search website for medical literature
Sponsor: National Center for Biotechnology, National Library of Medicine
Co-sponsor: NIH

CASE
The New York Academy of Medicine
1216 Fifth Avenue
New York, NY 10029
(212) 822-7237
http://www.case.nyam.org

Last updated: 4/11/02